Intro
Life can be so hard sometimes. As you can suspect life has been a rollercoaster the last year since my last post, I have continued to become weaker, my parents are finding it harder to take care of me, my grandmother just had another stroke, the price of living has gone up and much more.
My Grandmother
After my grandmother (my mums mum) had a stroke last year she had to move into our house for a month which meant my mother had to look after both me and her at the same time which put a strain on her. Thankfully, after a month of physio and rest she was able to walk properly and go back to live on her own and take care of her self. Then, about a month ago my grandmother had another stroke and this time it was a major one. Unfortunately, she had to stay in the hospital for a whole month without anyone being allowed to see her due to Covid protocols and her left side is more or less paralyzed. Last week she was allowed to come home and now my mother and her siblings must look after her 24/7 with some help from carer’s, this has put a lot of pressure on my mother. It is a huge challenge and hopefully everyone can cope with it and handle the burden.
My Life
I think I have been holding up pretty good over the last year even though I have gotten weaker. My body has become weaker with my arms and hands getting tighter and my legs getting more cramps. I am getting a bit more problems with my breathing and having to depend on my ventilator slightly more. My eating and swallowing is still causing problems but it is just about under control, everything else is still pretty similar but just weaker. Although, I did have a medical incident last August where my kidneys become extremely dry and that led me to spend a whole week in hospital. They had to slowly inject water drips into my body to bring the dryness down while also doing lots of blood tests. They also gave me a blood transfusion as my red blood cells were low and thankfully it got fixed and I haven’t had a problem since. I have also had two iron transfusions as my iron level was low. A reason why I have not done any posts is because my hands have gotten tighter and so it is harder for me to type. I can only use the mouse a couple hours a day using camera mouse software which uses my head and eye to move the curser, the rest of the day I have to use the Dragon Naturally Speaking software to use the computer. As I have gotten weaker over the year all I do on a normal day is watch sports, watch shows and go on the computer. Even though it can sometimes get repetitive and boring I try to carry on and just enjoy what I can do.
Conclude
This last year has shown me that life can be extremely hard sometimes and problems can occur at any time and you need to be able to cope with them and move on. As always, how ever tough life can get all you can do is to keep going and appreciate the good moments on your own and with your loved ones.
Stay strong and keep struggling.
Humair